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I can not get a breath: experiences of living with advanced chronic obstructive pulmonary disease.

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Hasson, Felicity, Spence, Alison, Waldron, Mary, Kernohan, George, Watson, Barbara and Cochrane, Barbara (2008) I can not get a breath: experiences of living with advanced chronic obstructive pulmonary disease. International Journal of Palliative Nursing, 14 (11). pp. 526-531. [Journal article]

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URL: http://www.internurse.com/cgi-bin/go.pl/library/article.cgi?uid=31756;article=IJPN_14_11_526_531

Abstract

This study aims to explore the potential for palliative care amongpeople living with advanced chronic obstructive pulmonary disease(COPD). Individual semi-structured interviews (n = 13) were conductedwith people who had a diagnosis of advanced COPD and were onoptimal tolerated drug therapy, with their breathing volume (forcedexpiratory volume at less than 30%) or were on long-term oxygentherapy or non-invasion ventilation. Participants raised concerns aboutthe uncertain trajectory of the illness and reported unmet palliativecare needs with poor access to palliative care services. For mostpeople, palliative care was associated with end of life; therefore, theywere unwilling to discuss the issue. There was a wide acceptance that,medically, nothing more could be done. Findings also suggest thatpatients had unmet palliative care needs, requiring information andsupport. The research suggests the need for palliative care to beextended to all (regardless of diagnosis), with packages of caredeveloped to target specifi c needs.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Nursing
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness
Institute of Nursing and Health Research > Education and Professional Issues Research Group
ID Code:6675
Deposited By:Miss Felicity Hasson
Deposited On:02 Feb 2010 16:01
Last Modified:23 Jul 2012 14:50

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