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Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease

Biomedical Sciences Research Institute Computer Science Research Institute Environmental Sciences Research Institute Nanotechnology & Advanced Materials Research Institute

Hasson, Felicity, Spence, Alison, Waldron, Mary, Kernohan, George, McLaughlin, Dorry, Watson, Barbara and Cochrane, Barbara (2009) Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease. Journal of Palliative Care, 25 (3). pp. 157-163. [Journal article]

Full text not available from this repository.

URL: http://www.ncbi.nlm.nih.gov/pubmed/19824276

Abstract

AIM: This study explored the experiences of palliative care that bereaved carers had while providing care to a dying loved one with chronic obstructive pulmonary disease (COPD). METHOD: Semi-structured interviews were undertaken with nine carers who had lost a loved one in the preceding 6 to 24 months. These interviews explored levels of satisfaction with disease management, symptom management, and end-of-life care. With permission, interviews were tape recorded, transcribed, and subjected to content analysis. FINDINGS: Three themes emerged from the data: the impact of the caring experience, the lack of support services, and end-of-life and bereavement support. Carers experienced carer burden, lack of access to support services, a need for palliative care, and bereavement support. CONCLUSION: The findings provide a first insight into the experiences of carers of patients with advanced COPD. Bereaved carers of patients who had suffered advanced COPD reported that they had received inadequate support and had a range of unmet palliative care needs. Special attention should be paid to educating and supporting carers during their caring and bereavement periods to ensure that their quality of life is maintained or enhanced.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Nursing
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Managing Chronic Illness
Institute of Nursing and Health Research > Education and Professional Issues Research Group
ID Code:6674
Deposited By:Miss Felicity Hasson
Deposited On:02 Feb 2010 15:58
Last Modified:23 Jul 2012 14:50

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