Abstract

It is increasingly important that people have input into the services they receive. However, research suggests that service users and their carers need support to work effectively with professionals and achieve change. Nineteen carers who represent the interests of service users with autism spectrum disorders were interviewed about services. Parents and carers were satisfied that their voices were being heard but highlighted training needs and changes that could help their contribution to service design. These included training in communication skills, written and verbal; background knowledge on the health and social care system; and information about how decisions, particularly financial ones, are made.