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Fair shares? Supporting families caring for adult persons with intellectual disabilities.

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McConkey, Roy (2005) Fair shares? Supporting families caring for adult persons with intellectual disabilities. Journal of Intellectual Disability Research, 49 (8). pp. 600-612. [Journal article]

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Abstract

BackgroundAlthough the majority of adult persons with intellectual disabilities are cared for by theirfamilies, remarkably little is known of the characteristics of their carers, the support services they receive and their unmet needs. A particular concern is whether or not carers have equitable access to services. MethodInformation was gathered from service staff who knew best the person with the disability. A standard pro forma was used with a representative sample of over1500 family carers in Northern Ireland (26%) of the estimated population).ResultsNearly half of the people were being cared for by both parents, but around one third lived with lone carers and 20% with another relative. These subgroups of carers varied significantly in their personal characteristics and in terms of the person forwhom they cared. However, Regression Analyses identified that their relative’s higher dependency in person care was the only common variable that was predictive of carers’ access to support services. A possible measure of unmet need for various supportservices was derived.ConclusionsServices need to pay greater attention to the characteristics of family carers so as to overcome some of the present inequities in supports offered to them. Further areas for future research are identified.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Nursing
Research Institutes and Groups:Institute of Nursing and Health Research
Institute of Nursing and Health Research > Intellectual and Developmental Disabilities
ID Code:18355
Deposited By:Prof Roy McConkey
Deposited On:19 May 2011 12:27
Last Modified:19 May 2011 12:27

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