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The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review

Biomedical Sciences Research Institute Computer Science Research Institute Environmental Sciences Research Institute Nanotechnology & Advanced Materials Research Institute

McKeown, LP, Porter-Armstrong, Alison and Baxter, GD (2003) The needs and experiences of caregivers of individuals with multiple sclerosis: a systematic review. Clinical Rehabilitation, 17 (3). pp. 234-248. [Journal article]

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DOI: 10.1191/0269215503cr618oa

Abstract

Primary objective: To appraise recent studies regarding the needs and experiences of caregivers of individuals with multiple sclerosis (MS). Design: The following computerized databases were searched: CINAHL, BIDS IBSS, ASSIA, MEDLINE, PSYCHINFO, British Nursing Index, ISI Web of Science, Zetoc, AMED (1990-April 2002). The computer-based search was supplemented by manual searches of the reference lists of all retrieved studies and review articles. Inclusion and exclusion criteria were formulated. Results: Twenty-four studies from across the world that met the inclusion criteria were reviewed. The majority of studies were descriptive in nature. The studies covered a variety of topics, including how carers assist people with MS, the effect of providing care on a carer's physical and psychological wellbeing, social life, financial situation and overall quality of life, and how carers cope with the stresses of providing care. Conclusions: Providing care for a person with MS has a major impact on all areas of the caregiver's life. Perceived social support has been shown to have a beneficial impact on the caregiver. Limitations in design and variation in methodology of studies limits the generalizability of findings. There is a need for further research, in particular the development of reliable and valid disease-specific caregiver assessment instruments.

Item Type:Journal article
Faculties and Schools:Faculty of Life and Health Sciences
Faculty of Life and Health Sciences > School of Health Sciences
Research Institutes and Groups:Institute of Nursing and Health Research > Centre for Health and Rehabilitation Technologies
ID Code:12870
Deposited By:Dr Alison Porter-Armstrong
Deposited On:02 Apr 2010 10:08
Last Modified:29 Feb 2012 15:48

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